May is Cystic Fibrosis (CF) awareness month, which is close to our hearts for many reasons. Over the years, we have had the honour of meeting so many inspiring people affected by CF who have touched us with their resilience, passion for life and positive attitude that we are committed to helping make a difference by supporting Cystic Fibrosis Australia and the families of those affected by CF.
CF is the most common life threatening genetic condition in Australia affecting one in 2,500 babies, which equates to one baby born every four days. People suffering with CF develop an excessive amount of thick and sticky mucus within the lungs, airways and the digestive system. Sadly there is currently no cure for CF.
As part of our CF commitment, Synxsole will be donating $1.00 from every pair of Synxsole Orthotics sold during the month of May to raise awareness of the condition and to help affected families.
Synxsole ambassador and athlete Nathan Charles is a professional Australian rugby player who also has CF. He is such an inspirational role model with an undeniable strength and determination which is nothing short of admirable. Not only is Nathan a down to earth, all around nice guy, he is passionate about raising awareness of CF and is such an inspiration for young kids and adults.
To get a better insight into the reality of this condition and how it affects so many families in Australia we had the pleasure of speaking to an amazing and inspiring mother and son who both suffer from CF, Brooke Murphy (36) and her son Brodie (13).
Brooke outlined a typical morning in their household,
“First treatment of the day is hypertonic saline, which is delivered via a nebuliser and inhaled through your airways and into your lungs, followed by physiotherapy to help clear any trapped mucous and a handful of pills including Creon (artificial enzyme taken before eating), vitamins, minerals and which ever antibiotics, steroids, inhalers are required at the time”.
“During the winter months, it can become more difficult to fight different infections with hospitalisations often lasting up to 2-3 weeks at a time”.
On the prognosis of CF sufferers over the years, Brooke explained that she wasn’t expected to live past her teens and now 35 years on after her diagnosis, she is remaining positive and reports “There's no way we are giving up and we will always live in hope that there WILL be a cure!”
Cystic Fibrosis Australia continues to work tirelessly to support families, we too are proud to support them in their journey of educating and assisting families affected by CF. Help us support CF and buy your pair of Synxsole Orthotics today.
"We like to live as normal life as possible and not let our CF take control of our lives. CF is a part of us, fighting to survive is our way of life" Brooke & Brodie